Special Needs Baby
Aiya has been attending a main stream day nursery since she was about 2 years old for a few sessions a week. The main stream nursery were brilliant with her, I would not have left Aiya with them if I didn't believe she was in safe hands. The nursery Aiya went to was the same… Continue reading Starting School
Aiya continues to fill us with joy every day, a little smile or a cheeky grin melts my heart. Some parents might worry that big milestones aren’t being achieved, but for me the main thing is that she is happy and healthy. This little girl has come a long way considering what was predicted for… Continue reading Development Journal ( 2 ½ Years Old)
There is a lot advice out there on how to prepare yourself and your child for childcare, addressing common concerns such as, ‘I don’t feel ready to leave my child, what should I do?’ ‘My child cries when I leave her. How can I help her settle?’ Luckily Aiya starting nursery has been a very… Continue reading Miss Independent
Aiya’s brother is 5 years old and although we try to explain to him about Aiya’s condition when he asks ‘When is Aiya going to walk?’ or ‘When will she be able to play with me?’, he is yet to understand that she is different to most children. Last week he asked when Aiya would… Continue reading Big Brother
It’s been a busy few months and a while since I’ve written a post, so thank you to all my friends and family for asking where the next one is as this has spurred me on to keep writing even when life gets a bit hectic! Reflecting on 2017, it was a year of change… Continue reading On Reflection
Aiya is now 18 months old and everyday we’re grateful that she is making great progress and doing so well against the original diagnosis we were given. Aiya’s communication skills have really come along over the past 3 months, she is now babbling away and has learnt that when she makes a ‘wah wah’ sound by… Continue reading Development Journal (18 months)
It has been an emotional few weeks and it’s been difficult to write against a backdrop of mixed emotions as we have been given more clarity on what Aiya’s future may look like, good and bad. Aiya’s condition is Microcephalic Osteodysplastic Primordial Dwarfism Type 1 (MOPD Type 1) and there have only ever been 30… Continue reading Microcephalic Osteodysplastic Primordial Dwarfism Type 1
All babies develop at different rates and I have fully embraced this truth with Aiya. I don’t worry about what she’s supposed to be doing for her age as I did with my first, constantly referring to my copy of ‘What To Expect - The First Year’ to check if my little boy was where… Continue reading Development Journal
We'd just returned from a much needed holiday and hadn't really discussed the scan at length. I think we just pushed it to the back of our minds so that we could enjoy some quality time together as a family. It had been a demanding few months for the other half and my body was… Continue reading First Consultant Scan (21 weeks +4 days)
Project Aiya 