Special Needs Baby
Aiya continues to fill us with joy every day, a little smile or a cheeky grin melts my heart. Some parents might worry that big milestones aren’t being achieved, but for me the main thing is that she is happy and healthy. This little girl has come a long way considering what was predicted for… Continue reading Development Journal ( 2 ½ Years Old)
Aiya is 2 years old today and it’s amazing to see how far she has come given all the challenges she faces. Our little miracle baby came into this world at 1.2kg and measuring 40cm in length and is now 68cm and weighs 7.5kg. She is approximately the size my son was at 7 months old.… Continue reading Happy 2nd Birthday!
Unfortunately in most cases there is not a manual on how to raise children with additional needs, because every child is different with different challenges. In Aiya’s instance in particular, there are so few cases of MOPD type 1, making an educated guess about her health issues and development can be difficult given the lack… Continue reading Things I’ve learnt
Aiya is now 18 months old and everyday we’re grateful that she is making great progress and doing so well against the original diagnosis we were given. Aiya’s communication skills have really come along over the past 3 months, she is now babbling away and has learnt that when she makes a ‘wah wah’ sound by… Continue reading Development Journal (18 months)
It has been an emotional few weeks and it’s been difficult to write against a backdrop of mixed emotions as we have been given more clarity on what Aiya’s future may look like, good and bad. Aiya’s condition is Microcephalic Osteodysplastic Primordial Dwarfism Type 1 (MOPD Type 1) and there have only ever been 30… Continue reading Microcephalic Osteodysplastic Primordial Dwarfism Type 1
Project Aiya 