Special Needs Baby
There is a lot advice out there on how to prepare yourself and your child for childcare, addressing common concerns such as, ‘I don’t feel ready to leave my child, what should I do?’ ‘My child cries when I leave her. How can I help her settle?’ Luckily Aiya starting nursery has been a very… Continue reading Miss Independent
We’ve never really asked how or why Aiya is the way she is. We make the most of the situation we are in, focusing on the silver linings and all the positives that Aiya has brought to our lives. We are firm believers that there is no point in pondering on what cannot be changed or contemplate how life could have been different.… Continue reading If Only
Unfortunately in most cases there is not a manual on how to raise children with additional needs, because every child is different with different challenges. In Aiya’s instance in particular, there are so few cases of MOPD type 1, making an educated guess about her health issues and development can be difficult given the lack… Continue reading Things I’ve learnt
Although 16th March 2016 was one of the best days of my life, the whole day remains a blur and I have snippets of memories of what happened. I realise now that I didn’t remember what time Aiya was born, I had to look it up. I don’t remember dropping my son at nursery that… Continue reading March 16th 2016
Aiya is now 18 months old and everyday we’re grateful that she is making great progress and doing so well against the original diagnosis we were given. Aiya’s communication skills have really come along over the past 3 months, she is now babbling away and has learnt that when she makes a ‘wah wah’ sound by… Continue reading Development Journal (18 months)
It has been an emotional few weeks and it’s been difficult to write against a backdrop of mixed emotions as we have been given more clarity on what Aiya’s future may look like, good and bad. Aiya’s condition is Microcephalic Osteodysplastic Primordial Dwarfism Type 1 (MOPD Type 1) and there have only ever been 30… Continue reading Microcephalic Osteodysplastic Primordial Dwarfism Type 1
Project Aiya 