Special Needs Baby
Aiya has been attending a main stream day nursery since she was about 2 years old for a few sessions a week. The main stream nursery were brilliant with her, I would not have left Aiya with them if I didn't believe she was in safe hands. The nursery Aiya went to was the same… Continue reading Starting School
I’ve been meaning to do an update on Aiya’s development for a while and I’ve just realised it’s been a year since my last post! It’s been a busy year and a lot has been going on for Aiya, as well as the family. In February Aiya had hip surgery to correct hip dysplasia, post-surgery… Continue reading Development Journal ( 3 ¾ Years Old )
Aiya continues to fill us with joy every day, a little smile or a cheeky grin melts my heart. Some parents might worry that big milestones aren’t being achieved, but for me the main thing is that she is happy and healthy. This little girl has come a long way considering what was predicted for… Continue reading Development Journal ( 2 ½ Years Old)
There is a lot advice out there on how to prepare yourself and your child for childcare, addressing common concerns such as, ‘I don’t feel ready to leave my child, what should I do?’ ‘My child cries when I leave her. How can I help her settle?’ Luckily Aiya starting nursery has been a very… Continue reading Miss Independent
We’ve never really asked how or why Aiya is the way she is. We make the most of the situation we are in, focusing on the silver linings and all the positives that Aiya has brought to our lives. We are firm believers that there is no point in pondering on what cannot be changed or contemplate how life could have been different.… Continue reading If Only
It’s been a while since I’ve written a post and a lot has changed for Aiya in this space of time. Aiya is now much more ‘present’ in the world. Whereas once she would not have noticed the world around her, she is now actively participating and trying to get familiar people’s attention. She’s finding… Continue reading Where We Are
Aiya is 2 years old today and it’s amazing to see how far she has come given all the challenges she faces. Our little miracle baby came into this world at 1.2kg and measuring 40cm in length and is now 68cm and weighs 7.5kg. She is approximately the size my son was at 7 months old.… Continue reading Happy 2nd Birthday!
Unfortunately in most cases there is not a manual on how to raise children with additional needs, because every child is different with different challenges. In Aiya’s instance in particular, there are so few cases of MOPD type 1, making an educated guess about her health issues and development can be difficult given the lack… Continue reading Things I’ve learnt
Recently more and more people have commented on how Aiya is starting to look like me and I’m not sure why but it makes me feel sad. Maybe it’s because I can see what an alternative future may have looked like for her, if fate had delivered her a different hand. She would have been… Continue reading Little Fighter
It’s been a busy few months and a while since I’ve written a post, so thank you to all my friends and family for asking where the next one is as this has spurred me on to keep writing even when life gets a bit hectic! Reflecting on 2017, it was a year of change… Continue reading On Reflection
Project Aiya 