Special Needs Baby
Unfortunately in most cases there is not a manual on how to raise children with additional needs, because every child is different with different challenges. In Aiya’s instance in particular, there are so few cases of MOPD type 1, making an educated guess about her health issues and development can be difficult given the lack… Continue reading Things I’ve learnt
Aiya has not been well the past few weeks, she had a fever for 8 days due to an infection, which she has now thankfully got over with the help of antibiotics. When healthy children are ill, as a parent you worry and stress, because your little bundle of joy is hurting and there is… Continue reading Germ Defence
Recently more and more people have commented on how Aiya is starting to look like me and I’m not sure why but it makes me feel sad. Maybe it’s because I can see what an alternative future may have looked like for her, if fate had delivered her a different hand. She would have been… Continue reading Little Fighter
It’s been a busy few months and a while since I’ve written a post, so thank you to all my friends and family for asking where the next one is as this has spurred me on to keep writing even when life gets a bit hectic! Reflecting on 2017, it was a year of change… Continue reading On Reflection
When Aiya was a few days old we were told by her doctors that she had spasticity in all four limbs which meant she would most probably never walk or have full mobility of her arms. I’m pleased say my determined little girl is exceeding the doctor’s expectations with her current physical ability. Aiya… Continue reading Physical Development
People often ask me “what do you do all day?” and “do you miss working?” The answer to the latter is no, if circumstances were different maybe I would, but for me time is precious and doing things around my family is key. I do miss getting dressed for work and the social interaction that… Continue reading Being Mum
Although 16th March 2016 was one of the best days of my life, the whole day remains a blur and I have snippets of memories of what happened. I realise now that I didn’t remember what time Aiya was born, I had to look it up. I don’t remember dropping my son at nursery that… Continue reading March 16th 2016
I’m convinced Aiya has said her first word, it’s not mummy or daddy, but “mam mam” referring to food. Since we’ve had the high chair my little chunk has loved eating and it is a much more enjoyable experience for both of us. Rather than struggling with her on my lap I can now sing… Continue reading Language Acquisition
At 35 weeks + 4 days, despite being told there was a high risk the baby may die in utero, we made our birth plan, as we had to make decisions on how we wanted the baby to be delivered and what we wanted to do after the birth. The doctors had wanted me to… Continue reading 35 weeks + 4 days to The Weeks Leading Up To The Birth
Aiya is now 18 months old and everyday we’re grateful that she is making great progress and doing so well against the original diagnosis we were given. Aiya’s communication skills have really come along over the past 3 months, she is now babbling away and has learnt that when she makes a ‘wah wah’ sound by… Continue reading Development Journal (18 months)
Project Aiya 